Grief and Loss for People with Intellectual and Developmental Disabilities: Best Practices across the Life Course

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Cost and Registration

$20 for UBSSW alumni
$25 for all others


Monday, July 30, 2018

Registration: 5:00 pm - 5:30 pm
Presentation: 5:30 pm - 8:30 pm  


403 Hayes Hall, UB South Campus, Amherst, NY 

Closest parking lots include Abbott, Townsend and Diefendorf Lots. Please note that while parking is open after 3pm on campus, it is still at a premium, so give yourself enough time to park and find the building.


This workshop will explore the unique issues faced by people with intellectual and developmental disabilities (IDD) and those who care for them as they experience grief and loss throughout the life course. People with IDD represent approximately 3% of the American population, and there is significant evidence to suggest that they are disproportionately vulnerable to complicated grief especially during significant life transitions. This training provides timely and essential information for all professionals working directly or indirectly with this population at all stages of life.

Content will focus on the demographic characteristics of people with IDD and their caregivers, including helping you to achieve a deeper understanding of their experiences throughout the life course.  Sources of grief and loss at differential transition points will be explored, including but not limited to: bereavement in infancy and childhood (e.g. diagnosis), adolescence (e.g. bullying), early adulthood (e.g. “aging out”), middle adulthood (e.g. parental loss), and late adulthood and end-of-life (e.g. mortality). Throughout the workshop, you will be provided with tools and resources that can be immediately implemented into your daily practice, including evidence-based assessments, interdisciplinary interventions, and community-based resources that dovetail with the NYS Office for People with Developmental Disabilities policies and services.


  1. Examine the distinct needs of people with IDD and their caregivers in bereavement using a trauma-informed, human rights perspective;
  2. Describe significant transitional events that can trigger complicated grief responses in people with IDD throughout the life course;
  3. Use assessment and intervention strategies to support with IDD and their families to cope with grief and loss in a manner that is person-centered and grounded in a strong evidence-base.
  4. Apply community-based resources and best practices to promote positive coping in bereaved people with IDD and their caregivers.

CEUs for New York State LMSWs & LCSWs

NYSED LMSW & LCSW contact hours are being provided through the University at Buffalo School of Social Work’s Office of Continuing Education. This Office is recognized by the New York State Education Department's State Board for Social Work as an approved provider of continuing education for licensed social workers #SW-0001. Full attendance is required; no partial credit will be awarded for partial attendance. 3 live in-person contact hours have been approved.

Questions about CEU's?

Please contact the Office of Continuing Education

Phone: 716-829-5847



Jacqueline McGinley, LMSW, PhD

Jacqueline McGinley, LMSW, is a PhD graduate of the University at Buffalo School of Social Work. Jackie has been supporting and advocating for people with intellectual and developmental disabilities for over 15 years. She began as a volunteer with the Special Olympics and the Chemung ARC. Then, after obtaining her MSW (Rutgers University) and attending a Certificate Program in Developmental Disabilities (The Boggs Center on Developmental Disabilities), Jackie worked for over four years in nonprofit disability organizations in positions ranging from social worker to behaviorist to administrator. As a researcher, Jackie has drawn upon her experiences in practice and focused on improving care for people with intellectual and developmental disabilities and their families. She is the author of several articles on related to grief and loss, including “From Nonissue to Healthcare Crisis: A Historical Review of Aging and Dying with an Intellectual and Developmental Disability”, which was published in the journal Intellectual and Developmental Disabilities

Jackie McGinley

Jackie McGinley

ADA Accommodations

If you require any support for your ADA needs in the United States, please contact us by email at least 3 weeks prior to the event by email at  or by phone at 716-645-1259.

Customer Service

We are happy to respond to any concerns or questions you may have. Please contact Sarah Watson by email at or by phone at 716-645-1259.